CTRMeta

From CTRNet Wiki

Work groups are commonly formed about disease sites to establish national definitions for these elements. Currently, a pilot work group for Head and Neck has been formed and is working through compiling and defining data elements. The group consists of:

• Michelle Parisien - Group Librarian
• Twylla Versluis - Librarian
• Steven Nakoneshny - Librarian
• Aaron Suggitt - Administrator

The group's secondary purpose will be to develop a standard procedure for further disease-site work groups to follow when curating additional data elements. This process will be documented here and supported with process flows, examples, and other documentation as required.

Metadata Curation Process

• Establishes a working list of data element concepts (DEC). Focus is on naming and basic definition.
• Data Element Concepts are related to existing Objects and Properties. Definitions can be inherited to better define the DEC.

If existing objects/properties cannot be found then new ones must be created from existing concepts (may need to create these as well).

• Once a DEC has been properly defined and linked then the creation of new Data Elements can begin.
• Data Elements require validation rules, value domain information such as format, data type and look up

values to be defined.

• These data elements are then grouped into data sets.